This article will tell you most everything you need to know.  Our best friends have a grandson who was born with this condition and he was 10 years old this year.  He walks now, but when he has to go very far, he needs his walker.  He chatters like a mockingbird though!  Sure nothing wrong with his brain.  Sweet little Max. 

He spent a whopping amount of time having surgeries and doing rehad at the Shriner's hospital and without that place, he would not be as advanced as he is today.  If you're looking for a place to donate, go to LoveShriners.org and donate whatever you can, they appreciate every penny and they use the money very wisely.  One of the best charities you can donate to, bar none. 

https://articles.mercola.com/spina-bifida.aspx